Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”
Fan Fun with Damian Lewis is seven years old today!
Here we are, a bunch of inspired fans, 2557 days, 1226 blog posts and over 3.15 million views from 229 countries later… absolutely thrilled and totally beaming about how far we have come!
I had a conversation with Lewisto as I was pondering, in the last weeks of 2014, whether it would be worth keeping an online fan diary about Damian Lewis. Being the rational guy that he is, Lewisto suggested I run with this only if I was confident I could commit for at least two years so it would be worth the effort. Continue reading “Seven Years with Damian Lewis”
There is no question that the last nine months have been different than any other for everyone. And so, for Damian, too, there was no filming, no going out in London, no theatre, no Wimbledon, no summer festival or live concert. l. But the good news is that the pandemic did not stop him from being very good at doing good.
We talked about Damian and Helen’s finest moment during the pandemic, Feed NHS, earlier here.
But then Damian wore his charity hat multiple times throughout the year for different great causes. And I think if Damian’s generous heart does not make a top moment, what else does?