Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”
What helped me cross paths with the amazing founders of this fan page was fan fiction, particularly a Homeland fic I started up in 2013 titled Suddenly.
The story started as my love letter to all things Carrie f*cking Mathison, and my wanting to explore an alternate, less bleak and lonely future for my leading lady fave where her brilliant, badass self could still shine through.
“My job, my illness. They don’t mesh with my having a pet rock, let alone a foster child.”
Before he hit the big time in cable TV, Damian did some smaller, lesser known roles in British television. The role of Adam Weston in a feature-length episode of mystery drama Touch of Frost may not be a role that Damian is particularly proud of, given how disdainfully he spoke of it at the NY Times Talk in May 2014.
Nonetheless, I’d say the role begs remembering, if, for nothing else, to give us a picture of Damian at 25. According to Damian, roles such as this one were the few available to British actors in television in 1996. It was either Merchant-Ivory-esque period drama or stories of the struggles of the underclass left in the wake of Thatcherism, both “classes” of roles Damian would have been uniquely qualified to play, but only later. First, he had to build up a resume with things like Touch of Frost. So here’s Damian at 25, a Shakespearean trained thespian and, they ask him to get down to his skivvies. Okay, he’s still doing parts that get him into his skivvies some 20 years later, but, hey, who’s counting. As Bobby Axelrod would say:
Gertrude Bell had a pretty unconventional life, particularly as a woman, in early 20th century. She was a traveler, writer, archaeologist, explorer, cartographer, political attaché and a spy for the British Empire in the Middle East. She played a significant role in shaping the politics of the Middle East and drew up the borders of modern Jordan as well as Iraq. Think of more or less a female Lawrence of Arabia. Queen of the Desert has her life before WWI at its center, in particular the two tragic love stories she had. Continue reading “Fan Fun Movie of the Month: Queen of the Desert”