Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*

source: Sohana Research Fund

You all know Damian is the patron of the wonderful charity Cure EB, a non-profit organization that works around the clock to raise awareness for Epidermolysis Bullosa as well as funds for research so we can have a world without this terrible skin condition. And you know why the name is Cure EB?

Well, the patron has the answer! Continue reading “Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*”

Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”

TOP Damian Lewis Moments 2018: Cure EB

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “TOP Damian Lewis Moments 2018: Cure EB”

The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it like Damian Lewis and Raise Awareness for EB!

You all know Damian is the proud patron of Cure EB (formerly Sohana Research Fund), a wonderful charity that works very hard to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.

When we shared the name change information on Twitter a few months ago, the patron has quoted the tweet and said:

Continue reading “Do it like Damian Lewis and Raise Awareness for EB!”