musings about the actor and the characters he brings to life
Damian Lewis answers the Vanity Fair Proust Questionnaire.
Vanity Fair: “Which living person do you most admire?”
Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.
Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”
Damian Lewis answers the Vanity Fair Proust Questionnaire.
Vanity Fair: “Which living person do you most admire?”
Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.
Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”
You all know Damian is the proud patron of Cure EB (formerly Sohana Research Fund), a wonderful charity that works very hard to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.
When we shared the name change information on Twitter a few months ago, the patron has quoted the tweet and said:
Because we WILL find a cure….! https://t.co/KAyl9uuHNK
— Damian Lewis (@lewis_damian) April 17, 2018
Continue reading “Do it like Damian Lewis and Raise Awareness for EB!”
You all know by now Damian Lewis is a proud patron of Sohana Research Fund.
Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Let’s Give a Hand to Sohana Research Fund for a World without EB!”