Do it Like Damian Lewis: Help Raise Awareness for EB!

Cure EB at BGC Charity Day 2022

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”

Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB!

source: Sohana Research Fund

You all know Damian is the patron of the wonderful charity Cure EB, a non-profit organization that works around the clock to raise awareness for Epidermolysis Bullosa as well as funds for research so we can have a world without this terrible skin condition. And you know why the name is Cure EB?

Well, the patron has the answer! Continue reading “Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB!”

Top Damian Lewis Moments 2019: Cure EB

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Top Damian Lewis Moments 2019: Cure EB”

Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”