Throwback Thursday to Ride4Hugo in Memory of Hugo and Helen

L-R: Damian, his sister Amanda Yaxley, his brother Gareth Lewis, and brother in-law Charles Yaxley during the bike ride in memory of Hugo and Helen in June 2022

I find it beyond impressive when families turn their tragic losses into good for many others in memory of the loved ones they lost. Ride4Hugo, a campaign Damian’s family run in memory of Hugo Yaxley, Damian and Helen’s nephew, who tragically died in a car accident in November 2020, and also in memory of Helen, who passed away only 5 months after Hugo’s accident, is an extraordinary effort aimed to do good for so many people.

source: @yaxleymumma Instagram

And Hugo’s older brother Josh running the London Marathon last weekend in memory of Hugo and to raise funds for Place2Be, a mental health charity for children and young people, inspires me to re-visit the family’s Ride4Hugo campaign. Well done, Josh.

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Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”

Do It Like Damian Lewis and Support “Coffee to Cure EB”

Most of you know that Damian Lewis is a proud patron of Cure EB. And Damian has taken to social media early this week to support this brilliant charity’s new campaign: Coffee to Cure EB.

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TOP Damian Lewis Moments 2023: Cure EB and HvH Arts

Damian Lewis with Debbi Clark and Sharmila Collins at the BGC Day 2021

Damian Lewis is the proud patron of two charities, Cure EB and Sir Hubert von Herkomer Arts Foundation (HvH Arts). In the photo above, you see him with two formidable ladies: On the left is Debbi Clark, the founder and CEO of Sir HvH Arts, and on the right is Sharmila Collins, the founder and CEO of Cure EB. And Damian making time for these charities, attending their events and working to raise funds for them is always a  TOP MOMENT of the year!

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