The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

The Fan Fun with Damian Lewis Holiday Gift Giving Guide 2020 Edition!

Holiday greetings to you all!  I am thrilled to return, once again, for an updated version of our annual gift giving guide. If you have a Damian Lewis fan in your life, this post is for YOU!

This photo was taken in front of my garage during this past spring!

I am a burlesque performer, who specializes in holiday-themed acts.  Being known as the “Queen of Christmas”, I love merging my two worlds and bringing my love of the holiday season AND my love of all things Damian into one fun post.  This year is a little different than most, because live entertainment just isn’t safe yet.  I’m still staying busy and finding ways to live my best holiday life! 

And as always,  here are some of our tried and true gift giving favorites, and some new picks-enjoy!! Continue reading “The Fan Fun with Damian Lewis Holiday Gift Giving Guide 2020 Edition!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”

Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”

Top Damian Lewis Moments 2019: Cure EB

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Top Damian Lewis Moments 2019: Cure EB”