Holiday greetings to you all! I am thrilled to return, once again, for an updated version of our annual gift giving guide. If you have a Damian Lewis fan in your life, this post is for YOU!
Hollieclause is coming to town! Photo by Clockwork Steve
I am a burlesque performer, who specializes in holiday-themed acts. Being known as the “Queen of Christmas”, I love merging my two worlds and bringing my love of the holiday season AND my love of all things Damian into one fun post. My schedule is full but I am never too busy to help my friends here at Fan Fun!
Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.
Most of you know Damian Lewis is a proud patron of Cure EB.
Sohana Collins is a young woman who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB (Formerly Sohana Research Fund) to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.
It’s EB Awareness Week – a week to raise awareness about this terrible skin condition and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in Epidermolysis Bullosa. And we would like to take this opportunity to raise awareness as well as funds to find a cure for EB, one of about 7,000 rare diseases for which there is no cure.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
Patron Damian Lewis with Cure EB founder and CEO Sharmila Collins and young EB patients on BGC Charity Day 2024
The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on EB Awareness Week!”
Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this opportunity to raise awareness as well as funds to find a cure for EB, one of about 7,000 rare diseases for which there is no cure.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
Patron Damian Lewis with Cure EB founder and CEO Sharmila Collins and young EB patients on BGC Charity Day 2024
The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”
Holiday greetings to you all! I am thrilled to return, once again, for an updated version of our annual gift giving guide. If you have a Damian Lewis fan in your life, this post is for YOU!
Guess who’s back, back again…Hollie’s back, tell a friend
I am a burlesque performer, who specializes in holiday-themed acts. Being known as the “Queen of Christmas”, I love merging my two worlds and bringing my love of the holiday season AND my love of all things Damian into one fun post. My schedule is full but I am never too busy to help my friends here at Fan Fun!
