Eight Years with Damian Lewis

OH. MY. GOD.

Fan Fun with Damian Lewis is eight years old today!

Eight years?!?!?!

YES, eight years!

I vividly remember the conversation I had with Lewisto in the last weeks of 2014 about whether it would be worth keeping an online fan diary about Damian Lewis. Being the rational guy that he is, Lewisto suggested I do it  only if I was confident I could commit for at least two years so it would be worth the effort.

2 years?!?! We just quadrupled that 😀 😀 😀 Continue reading “Eight Years with Damian Lewis”

The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Most of you know Damian Lewis is a proud patron of Cure EB.

Sohana Collins is a college student who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB (Formerly Sohana Research Fund) to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Cure EB at BGC Charity Day 2022

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”

Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

 

Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”

Seven Years with Damian Lewis

DRUMROLL!

Fan Fun with Damian Lewis is seven years old today!

Here we are, a bunch of inspired fans, 2557 days,  1226 blog posts and over  3.15 million views from 229 countries later… absolutely thrilled and totally beaming about how far we have come!

I had a conversation with Lewisto as I was pondering, in the last weeks of 2014, whether it would be worth keeping an online fan diary about Damian Lewis. Being the rational guy that he is, Lewisto suggested I run with this only if I was confident I could commit for at least two years so it would be worth the effort. Continue reading “Seven Years with Damian Lewis”