Tag: Cure EB

The Big Give is Here: Let’s Give to Cure EB and HvH Arts This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off The Big Give Christmas Challenge! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Damian Lewis is the proud patron of two charities, Cure EB and Sir Hubert von Herkomer Arts Foundation (HvH Arts). In the photo above, you see him with two formidable ladies: On the left is Debbi Clark, the founder and CEO of Sir HvH Arts, and on the right is Sharmila Collins, the founder and CEO of Cure EB.

And here I am kindly inviting you to consider giving to these two charities this holiday season. I am sharing information about both as well as about how to donate via The Big Give Christmas Challenge. Please note that timing is key because donations will be DOUBLED by generous fund matchers for a week starting today!

Continue reading “The Big Give is Here: Let’s Give to Cure EB and HvH Arts This Holiday Season!”

Do It Like Damian Lewis and Support “Coffee to Cure EB”

Most of you know that Damian Lewis is a proud patron of Cure EB. And Damian has taken to social media early this week to support this brilliant charity’s new campaign: Coffee to Cure EB.

https://twitter.com/lewis_damian/status/1721501478081142972

Continue reading “Do It Like Damian Lewis and Support “Coffee to Cure EB””

Eight Years with Damian Lewis

OH. MY. GOD.

Fan Fun with Damian Lewis is eight years old today!

Eight years?!?!?!

YES, eight years!

I vividly remember the conversation I had with Lewisto in the last weeks of 2014 about whether it would be worth keeping an online fan diary about Damian Lewis. Being the rational guy that he is, Lewisto suggested I do it  only if I was confident I could commit for at least two years so it would be worth the effort.

2 years?!?! We just quadrupled that 😀 😀 😀 Continue reading “Eight Years with Damian Lewis”

The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Most of you know Damian Lewis is a proud patron of Cure EB.

Sohana Collins is a college student who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB (Formerly Sohana Research Fund) to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Cure EB at BGC Charity Day 2022

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”