Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!

Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called โ€œbutterfly children.โ€ Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”

50 Reasons to Love Damian Lewis

Well, the BIG DAY is here!

Happy 50th Birthday, Damian! May the next fifty be even better than the first. You make 50 look so damn good and we have (at least) that many reasons to love you! ENJOY!

Continue reading “50 Reasons to Love Damian Lewis”

TOP Damian Lewis Moments 2020: Philanthropy

There is no question that the last nine months have been different than any other for everyone. And so, for Damian, too, there was no filming, no going out in London, no theatre, no Wimbledon, no summer festival or live concert. l. But the good news is that the pandemic did not stop him from being very good at doing good.

We talked about Damian and Helen’s finest moment during the pandemic, Feed NHS, earlier here.

But then Damian wore his charity hat multiple times throughout the year for different great causes. And I think if Damian’s generous heart does not make a top moment, what else does?

So let’s start!

Continue reading “TOP Damian Lewis Moments 2020: Philanthropy”

The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know whoโ€™s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”