Today is Rare Disease Day, a day to raise awareness about rare diseases and the impact they have on patients’ lives. The primary target of the campaign is the general public; however, it is very important to raise awareness among policy makers, researchers, health professionals and anyone who has an interest in rare diseases. And we would like to take this day to raise awareness as well as funds to find a cure for EB.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
The kids that are born with Recessive Dystropic Epidermolysis Bullosa (RDEB) or EB for short lack the protein that holds their skin together. They have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Continue reading “Do it Like Damian Lewis: HELP Raise Awareness for EB on Rare Disease Day!”
What helped me cross paths with the amazing founders of this fan page was fan fiction, particularly a Homeland fic I started up in 2013 titled Suddenly.
The story started as my love letter to all things Carrie f*cking Mathison, and my wanting to explore an alternate, less bleak and lonely future for my leading lady fave where her brilliant, badass self could still shine through.
“Severn-I–lift me up–I am dying–I shall die easy–don’t be frightened–be firm, and thank God it has come!”
If there had been no Covid pandemic, they would have marked the 200th anniversary of John Keats’ death with a new production of the play Lift Me Up I am Dying in the house that Keats died – now the Keats-Shelley House in Rome. But when it was clear that a live performance would not be possible, the creator Pele Cox came up with an alternative: she would have Zoom meetings with the actors who happened to be in lockdown and then let them film themselves and bring to life a half-hour film based on the last weeks of Keats’ life. And they did.
Today marks the 201st anniversary of John Keats’ death and we re-visit the intimate virtual performance Damian gives in Lift Me Up I am Dying.
Damian Lewis brought to life a number of real-life characters on big as well as small screen. And I admit it has been my dream to interview a real-life character Damian played but it was obviously impossible to talk to Steve McQueen or Henry VIII about the impression Damian made on them as an actor and as a person. Yet, my dreams have recently come true and I am thrilled to have Howard Davies who Damian plays in Dream Horse today on Fan Fun.
While we find out about his enthusiasm in horse racing in the movie, Howard is a man of many talents. And he was so kind to answer my questions about the film, the special premiere for the syndicate, the memoir he recently published about Dream Alliance as well as the inevitable questions about the guy who names this blog. ENJOY!
Boys and their cars. And girls too, for that matter. There’s something about being behind the wheel of a nice automobile, pressing the gas, shooting ahead with the force of however many horses, and letting a machine take you where your feet can’t. Damian made his second appearance on Top Gear in June 2016 and got to drive around a bit: recklessly, dangerously, at the sort of speeds humans probably weren’t ever designed to go, at least not unaided. Yes, no doubt, there’s a rush there, the burst of power and the addictive lurching feeling of hairpin turns at top speed, the balance between control and utter abandon. One small explosion in a combustion chamber to get things moving, then the lingering burn of the fuel made from our fossils, and we’re off to the races, quite literally. And for those few seconds of sheer joy, you sorta want to forget that these are the very machines that have summarily sent our planet on a not-so-slow burn. Alas, let’s keep this post about joy, and the joy of watching Damian play with cars. Read on!