Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB!

source: Sohana Research Fund

You all know Damian is the patron of the wonderful charity Cure EB, a non-profit organization that works around the clock to raise awareness for Epidermolysis Bullosa as well as funds for research so we can have a world without this terrible skin condition. And you know why the name is Cure EB?

Well, the patron has the answer!


And while we may not be researchers working on a cure for this terrible and rare genetic skin condition, we can still help the bravest girl Damian Lewis has ever known and all other butterfly kids out there in our own little ways.

Sohana has turned 18 on July 15 – Happy Birthday brave and gorgeous girl!

Cure EB has come up with several FUN campaigns in the last couple of years varying from “EB Tongue Twister” challenge to “Stick out Your Tongue at EB” to Butterfly Brunch Club to raise awareness about the disease. They launched another FUN challenge especially suited for HOT summer days three years ago. And we are happy to let you know that it is EB Pop time of the year again!

How many balloons can you POP for butterfly kids?

Here is the drill directly from Cure EB’s Facebook Page:

Sharmila, Sohana’s wonderful mother and the wonderful mind behind Cure EB, and her lovely daughters explain in the video below how you can make your own water bombs…

…and they kick off the 2020 EB Pop Season!

There are many EB Pop videos on Cure EB’s Facebook Page from earlier years And, hey, a certain patron shared his own EB Pop on Twitter, too! Hats off, Damian, for a brave performance 😀 Good job, Manon and Gulliver!

And now that the patron has done his share and invited all his fans to take part in EB Pop, I am taking one for the Fan Fun Team 😀

I am grateful to Lewisto and my two dear friends for making this production possible at 100+ Fahrenheit in Central Park, but you know what, everyone was happy getting wet in the end! 🙂 Please join us, play EB Pop so we can raise awareness as well as help find a cure for EB. And, hey, you can always print the information below and use it for your own EB Pop!


And while we are thrilled that the research happening at the moment is very promising in finding a cure for EB, we are still not there yet! The clock is ticking and we need more and more research. You can watch in the video below about what funding research means to families living with Epidermolysis Bullosa. 

Donating to Cure EB for research is obviously the most direct way to help and there is no small donation. You can always donate securely to Cure EB here.

source: The Guardian

Please note that since the Collins family covers the cost of events, fund-raising as well as the administration services for Cure EB, 100% of donations individuals make directly go into research projects.

And please please please SPREAD THE WORD!  Check out Cure EB website for more information. Follow Cure EB on Twitter and Facebook. Please SHARE the information. Please HELP so we can beat Epidermolysis Bullosa, a disease “Hard to say, Hell to Live with!” together.

Author: Damianista

Academic, Traveler, Blogger, Runner, Theatre Lover, Wine Snob, Part-time New Yorker, and Walking Damian Lewis Encyclopedia :D Procrastinated about a fan's diary on Damian Lewis for a while and the rest is history!

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