Get Informed, Get Involved & Help Find a Cure for EB!

source: Sohana Research Fund
source: Sohana Research Fund

Damian Lewis is a proud patron of the Sohana Research Fund.

Damian has recently talked to Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research. You can see the video of their conversation below, and find out about this terrible skin condition, the research to find a cure, and how the funds raised by Sohana Research Fund are directly going into clinical trials that could benefit a number of patients.

Sharmila Collins started Sohana Research Fund to raise awareness and funds that would help her daughter Sohana, but also other children living with EB. These children are fragile to an extent that they are sometimes called the “butterfly children.”

I found out about the Fund thanks to a video Damian did last year to invite all to help out. Sohana’s story and her parents’ strength and determination moved me so much that I have been a follower and a supporter since.

Sohana started a FUN tongue twister challenge late November and told everyone: “Please help me laugh by taking on the #EB tongue twister challenge here and help the researchers stop the pain of EB!” Can you imagine a better way to raise awareness and funds to beat a disease than through fun and laughter? I CAN’T.

source: Sohana Research Fund

Damian Lewis and Helen McCrory kickstarted the challenge with their killer tongue twisters!

Damian nominated Benedict Cumberbatch, Sienna Miller and Tom Hiddleston for the Tongue Twister Challenge, and they were all GAME!

So… Damian Lewis, Helen McCrory, Benedict Cumberbatch, Sienna Miller and Tom Hiddleston ALL did it! Why not have a go yourself, have fun and support Sohana Research Fund?

Oh, yes, I did my own EB tongue twister and donated, too! I am proud to be a part of this picture with the lovely and brave Sohana in the middle!

source: Sohana Research Fund
source: Sohana Research Fund

I would love to invite all Damian Lewis fans to PLAY again! It’s easy, it’s fun! Just film your EB Tongue Twister, tweet it to @SohanaResearchF and they will take very good care of it! In case you wimp out and send a donation: text OUCH10 £10 to 70070. You can also securely donate anytime and anywhere on Justgiving.

Please get informed, get involved, and join in to help find a cure for EB as soon as possible!




Author: Damianista

Academic, Traveler, Blogger, Runner, Theatre Lover, Wine Snob, Part-time New Yorker, and Walking Damian Lewis Encyclopedia :D Procrastinated about a fan's diary on Damian Lewis for a while and the rest is history!

Join the conversation!

This site uses Akismet to reduce spam. Learn how your comment data is processed.