musings about the actor and the characters he brings to life
You all know by now that Damian Lewis is a proud patron of Sohana Research Fund (SRF). We have already seen him fund-raising on BGC Charity Day, taking the EB Tongue Twister Challenge as well as talking to Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research, to help raise awareness and find a cure for this very painful skin condition. Continue reading “Let’s Help Sohana Beat EB!”
Damian Lewis is a proud patron of the Sohana Research Fund.
Damian has recently talked to Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research. You can see the video of their conversation below, and find out about this terrible skin condition, the research to find a cure, and how the funds raised by Sohana Research Fund are directly going into clinical trials that could benefit a number of patients.
Continue reading “Get Informed, Get Involved & Help Find a Cure for EB!”
Damian Lewis is a proud patron of the Sohana Research Fund.
Sharmila Collins started Sohana Research Fund to raise awareness and funds that would help her daughter Sohana, but also other children living with the painful skin condition Recessive Dystrophic Epidermolysis Bullosa (RDEB). These children are fragile to an extent that they are sometimes called the “butterfly children.”
I found out about the Fund thanks to a video Damian did last year to invite all to help out. Sohana’s story and her parents’ strength and determination moved me so much that I have been a follower and a supporter since. Continue reading “Play Like Damian, Help Sohana Beat EB with Fun and Laughter!”