Tag: Epidermolysis Bullosa

Do it like Damian Lewis and Raise Awareness for EB!

You all know Damian is the proud patron of Cure EB (formerly Sohana Research Fund), a wonderful charity that works very hard to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.

When we shared the name change information on Twitter a few months ago, the patron has quoted the tweet and said:

Continue reading “Do it like Damian Lewis and Raise Awareness for EB!”

From Festivals to Sports to Charity: We Know What Damian Lewis Did This Summer :D

Happy Labor Day! It means this is the last chance for most of us to have one last long weekend before the summer ends. But it also means Billions Season 4 shoot is starting in New York, well, tomorrow!!!! It goes without saying we will follow the shoot to the best of our ability and write about our hopes, wishes and fantasies for Season 4 in the coming weeks and months.

But, today, we will talk about Damian’s summer, the second in a row he has enjoyed fully!

Damian constantly worked all summers between 2011 while he was shooting Homeland to 2016 when they were starting the Billions shoot in summer. So, when asked by a fan at The Goat stage door back in May 2017 about what he would be doing between The Goat and Billions, whose shoot would not start until September, he responded promptly: Continue reading “From Festivals to Sports to Charity: We Know What Damian Lewis Did This Summer :D”

Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*

source: Cure EB Facebook Page

First things first.

Same wonderful charity.

Same great mission.

Same brilliant patron.

NEW NAME!

Sohana Research Fund is NOW Cure EB so everyone can find the mission in their name. They are determined more than ever to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.

Continue reading “Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*”

Let’s Raise Awareness for EB on Rare Disease Day!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Sohana Collins is a young teenager who was born with RDEB, a rare disease, meaning she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. That is why Sohana’s parents Sharmila and James Collins founded Sohana Research Fund to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition. Continue reading “Let’s Raise Awareness for EB on Rare Disease Day!”

TOP Damian Lewis Moments 2017:
Sohana Research Fund

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “TOP Damian Lewis Moments 2017: Sohana Research Fund”