POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Do you want to HELP the bravest girl Damian has ever known?

Sohana Collins, who gives her name to Sohana Research Fund, is a teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!”

“Damian’s not mortal, that’s not true”: Tiffany’s Story

Hello all! Damianista welcomes you to a NEW Fan Story Tuesday!

Today’s story comes from a woman with a BIG heart and a LOVELY smile whom I am proud to call a friend. Tiffany does A LOT to help all in need both in her professional life as a therapist and in her private life as an extremely caring and giving person. We are thrilled she has taken the time to share her wonderful fan story with us. Cheers!

Why Damian? Why is Damian special? Damian is exceptional at his craft, his depth of character is conveyed in each role he portrays. There’s a distinct level of realism that Damian achieves in each character that I’ve seen no other performer reach. As a therapist I am fascinated by his performance in Keane. So real to life that it was initially hard to watch. He captured the delicate balance of suffering, creativity and compassion that many with mental illness struggle to cope with in every day life. There are so many real Keanes and Damian gave each one of them a very real voice capturing flawlessly their humanity. Continue reading ““Damian’s not mortal, that’s not true”: Tiffany’s Story”

Damian Lewis – Designing His Own
Philanthropy, Part I

Hello all! We welcome you to a very special guest blog today.

Lynda, one of our first and constant supporters, whose lovely fan story we published a few weeks ago, has been a consultant working with charitable families, foundations and trusts throughout the U.S. for more than 25 years. We are extremely thrilled to have her as a guest blogger today putting her expertise to work in a survey about our favorite actor’s philanthropic efforts.

Without further ado: Here is Lynda giving us Damian Lewis – Designing His Own Philanthropy, Part I. Please come back for Part II next Thursday!

Philanthropy, a word derived from ancient Greek roots, means love of humanity. In modern terms, it is the act of promoting the welfare of others through charitable donations and charitable acts.

GIVE and GET are two critical commandments in the world of philanthropy.   Philanthropists GIVE their money plus their time, often rolling up their sleeves to undertake physical, onsite work days on behalf of a cause important to them, whether building a house or needed playground or making an educational film or counseling young aspiring entrepreneurs. It is impossible for any one person or one family to give to all of the worthwhile charities in the world. So, people have to ask themselves, “What issues or challenges are important to me and my family?” Strategic giving involves setting charitable priorities and selecting recipients wisely through vetting and paring down. Some philanthropists sponsor fundraising events – luncheons, banquets, galas, marathon runs – that “get” or encourage others to give. And public figures can also lend their celebrity to make meaningful contributions to charitable causes. In doing so, they can GET others to donate money, time and effort. In the case of Damian Lewis, he has mastered so many of these generous strategies. Continue reading “Damian Lewis – Designing His Own
Philanthropy, Part I”

From Butterfly Brunch to Bond with
Research: NEWS From Sohana Research Fund!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet?

Continue reading “From Butterfly Brunch to Bond with
Research: NEWS From Sohana Research Fund!”

TOP Damian Lewis Moments 2016:
Sohana Research Fund

Sohana Collins, who gives her name to Sohana Research Fund, is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day.

Continue reading “TOP Damian Lewis Moments 2016:
Sohana Research Fund”

Let’s Give a Hand to Sohana Research Fund for a World without EB!

source: sohanaresearchfund.org
source: sohanaresearchfund.org

You all know by now Damian Lewis is a proud patron of Sohana Research Fund.

Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Let’s Give a Hand to Sohana Research Fund for a World without EB!”