EB Awareness Week is here!
You all know Damian is the proud patron of Cure EB (formerly Sohana Research Fund), a wonderful charity that works very hard to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.
When we shared the name change information on Twitter a few months ago, the patron has quoted the tweet and said:
Because we WILL find a cure….! https://t.co/KAyl9uuHNK
— Damian Lewis (@lewis_damian) April 17, 2018