POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Do you want to HELP the bravest girl Damian has ever known?

Sohana Collins, who gives her name to Sohana Research Fund, is a teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!”

Do It Like Damian Lewis: Stick Out Your Tongue at EB!

source: Sohana Research Fund
source: Sohana Research Fund

You all know by now Damian Lewis is a proud patron of Sohana Research Fund.

Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Do It Like Damian Lewis: Stick Out Your Tongue at EB!”

Damian Lewis Hanging Out with the Royals!

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source: @IrishGuardsBand

Damian Lewis participated in the final night of Her Majesty The Queen’s 90th Birthday Celebrations at Windsor Castle last Sunday. The celebration, filmed live on castle grounds, was about narrating the Queen’s life story as the longest-reigning British monarch from her birth in 1926 to present day.

Damian was spotted on the grounds earlier in the day during Sound Check…

source: Daily Mail
source: Daily Mail

…then he was among the crowd greeting the Queen and Prince Philip as they arrived for the final night of special birthday celebrations…

source: Getty Images
source: Getty Images

… And then he was on stage introducing a horse battalion in connection to some historic moments in queen’s life… Well, everyone knows that the queen LOVES horses! But did you know that her love for horses worked some wonders for Damian, too? 🙂 Curious? Then read more! Continue reading “Damian Lewis Hanging Out with the Royals!”

TOP Damian Lewis Moments 2015: Sohana Research Fund

source: Sohana Research Fund
source: Sohana Research Fund

Damian Lewis is a proud patron of Sohana Research Fund and has made time for the fund several times this year that we believe collectively make some of the TOP Damian Lewis MOMENTS of the year!

Damian interviewed Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research back in February. Please see their conversation below and find out about this terrible skin condition, the on-going research to find a cure, and how the funds raised by Sohana Research Fund are directly going into clinical trials that could ultimately  benefit a number of patients.

Continue reading “TOP Damian Lewis Moments 2015: Sohana Research Fund”

Make every week EB Week! There are many ways to HELP Sohana Research Fund – Pick One!

source: Sohana Research Fund
source: Sohana Research Fund

We’re past EB Awareness week, but why not make every week EB week? Because it’s time to spread the word about Sohana Research Fund, a small charity working extremely hard to spread awareness and raise funds for research to find a cure for Recessive Dystrophic Epidermolysis Bullosa (RDEB) “Hard to Say, Hell to Live with.”

Sohana is a young teenager who was born with RDEB which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day.  Continue reading “Make every week EB Week! There are many ways to HELP Sohana Research Fund – Pick One!”

Let’s Help Sohana Beat EB!

source: sohanaresearchfund.org
source: sohanaresearchfund.org

You all know by now that Damian Lewis is a proud patron of Sohana Research Fund (SRF). We have already seen him fund-raising on BGC Charity Day, taking the EB Tongue Twister Challenge as well as talking to Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research, to help raise awareness and find a cure for this very painful skin condition. Continue reading “Let’s Help Sohana Beat EB!”