The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Most of you know Damian Lewis is a proud patron of Cure EB.

Sohana Collins is a college student who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB (Formerly Sohana Research Fund) to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Cure EB at BGC Charity Day 2022

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”

Damian Lewis Continues to Support Cure EB

As the year comes to an end, we should definitely talk about Damian’s generous heart and the time and effort he puts into the causes close to his heart.

Damian answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Damian Lewis Continues to Support Cure EB”

The Big Give is Here: Let’s Give to Cure EB This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Continue reading “The Big Give is Here: Let’s Give to Cure EB This Holiday Season!”

Do it Like Damian Lewis: Help Raise Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet? Continue reading “Do it Like Damian Lewis: Help Raise Awareness for EB!”