Sohana Research Fund is NOW Cure EB so everyone can find the mission in their name. They are determined more than ever to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.
Damian will make his 4th appearance in Soccer Aid for UNICEF match between England and The Rest of the World this weekend. The match will kick off at 8pm on June 10 Sunday (UK time) at Manchester United’s Old Trafford stadium. The luckiest ones among us can buy tickets here to see the game at the stadium, and fans in the UK can catch the pre-match festivities as well as the full match LIVE from 6:30 pm on ITV and STV. And we, the mortals, do not seem to have any other option but following the game on social media!
Come meet the teams here and scroll down to select your star player!
Vanity Fair: “Which living person do you most admire?”
Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.
Sohana Collins is a young teenager who was born with RDEB, a rare disease, meaning she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. That is why Sohana’s parents Sharmila and James Collins founded Sohana Research Fund to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition. Continue reading “Let’s Raise Awareness for EB on Rare Disease Day!”
“He’s never given me any reason to be jealous.You know… he’s lovely, otherwise I wouldn’t have chosen him. If I don’t think he’s lovely, we’re all screwed.” – Helen McCrory
It is no secret we adore these love birds, or love butterflies, if you will, and we are extremely pleased to end the year, exactly like we did in 2015 and 2016, with our favorite Damian & Helen moments of 2017!
Well, it is obviously not easy to be two ridiculously talented and busy actors living together and raising a family. I remember Damian telling us at Cheltenham Literature Festival that the problem never goes away:
“When you’re two actors living together, you’re always asked to do work away from your home, so you just have to decide which ones are important enough to go and do away from home and try to spend the rest of the time together.”